There is a reason that I started this blog with a question (aside from playing on the title) and not just any question.
I recently ran into someone from grade school and decided to become reacquainted. We shared email information and after sending him an email that included a signature with one of my blogs as the "tagline" (thanks for that idea Stephanie) he asked about this blog. He had a question that I think anyone that reads this blog may be wondering, so I decided to take the opportunity to answer it here. Although I cannot remember the question verbatim, essentially he asked if I wanted this undiagnosed condition to be MS? I understood how this blog may lead people to believe that is what I want. So here is the answer that I gave him following his insightful question:
When a doctor first conveyed that my medical history suggested a possible MS diagnosis, I was relieved. The relief was not to have MS per say but rather to be taken seriously. For years, I have felt like I was going crazy, struggling with not feeling well but having tests coming back without results. When my "symptoms" changed I did not want to go to the doctor because I was terrified of being judged as a hypochondriac or seen as wasting my doctor's time and yet this time he thought it could be something. Once the feeling of relief passed and I thought about the enormity of a neurologically degenerative disease, I began to panic. I like my brain the way it is and I still have a lot I would like to do with it. Panic was followed with denial, believing that this would turn out like everything else in my medical history as just a scare, a benign test or a medical anomaly.
Then I was hit with realism: this is something.
So my answer, I want my health. If I cannot have that then I just want answers. I may talk a great deal about MS and that is because I have been pointed in that direction medically. I am trying to be as prepared and educated as I can be. I truly believe in proactive versus a reactive response. Lastly, this experience has its own lessons for me to appreciate and learn from regardless of the end diagnosis. I plan on reflecting on what this has meant to me and taking it forward in my career. I consider myself lucky to have the opportunity to do that.
I can totally understand how "not knowing" can be more frightening and frustrating than knowing a negative outcome. Keep up being such a fierce, fabulous and strong woman! And use the "h" word if you need to. :p
ReplyDeletePS: Thanks for the shout-out ;)